Doesn’t even begin to describe it.
Doctors constantly changing.
They wouldn’t try to figure out what why I was having seizures. They actually accused me of faking it, or over-exaggerating. Doctors who had never seen me before, who knew nothing of my condition, telling me the thing they didn’t know about or understand must be fake.
And it was many years of this. With many doctors, because they kept coming and going.
At one point, I had 5 appointments with 4 different doctors.
This was before the “Affordable Care Act” and after I was too old to be on my parents’ insurance, despite still being 100% dependent on them. And so I did not have insurance due to “pre-existing conditions.” My lack of insurance is possibly one reason why the CHC doctors didn’t care to try to help, along with knowing they likely wouldn’t be there long.
A few times I went in to try to get paperwork filled out to get EBT Cash Aid, but the doctors, who had never seen me before and didn’t know my condition, looked at me as said they wouldn’t sign that I was disabled. Which angered me, because I’ve lost every job I’ve undertaken since the seizures started as a result of the seizures preventing me from being able to work, and so I’d end up in seizures. They’d panic and call 911, take away my driver’s license, but still refuse to sign for me to get Assistance. After watching me convulsing on the floor for half an hour.
One of these doctors was so bad (Raj), that when he left, the rest of the staff actually threw a party in relief of him leaving.
When I would finally get a doctor that would listen, and did stick around for more than one or two appointments, they completely agreed that I was disabled. Although, at those times, I had financial support from my parents and grandmother, and so I had too much money to qualify for Cash Aid, which was less than what I needed at the time in order to attend school, eat, etc, and so I could not qualify for Cash Aid.
I did have two or three doctors at the CHC over the years that did listen and were supportive of my seizures being a hindrance to my ability to work.